The Amyloidosis Support Groups has put out a new booklet called Amyloidosis Awareness. To view the booklet please follow this link: http://www.amyloidosissupport.com/AmyloidAware_Booklet.pdf
Please feel free to share this link with your doctors, nurses, friends, family and anyone else that you think may benefit from its contents.
Paula Schmitt
Localized Amyloidosis
GA/FL/DC Support Group
Facilitator Amyloidosis Support Groups
Thank you for sharing this, ga_peach!
I see that Dr. Martha Grogan is one of the contributing doctors. We met with her for the first time last week. She gave us a wealth of information on cardiac amyloidosis.
Dr. Grogan is a gem. I will actually see her this weekend at our Familial conference in Chicago. We will have 3 cardiologists attending the meeting along with oncologists, nephrologists, neurologists, a Geneticist, reps from the major pharma companies and a few others thrown in for good measure. It should be an amazing meeting and I will report back on it once I get a chance.
Paula
Thank you and please keep all of us informed on any thing you learn about this disease. I go to the Amyloid center at Stanford. The first week of Nov. and will update. Thank you Kay Heaton
ga_peach said:
Dr. Grogan is a gem. I will actually see her this weekend at our Familial conference in Chicago. We will have 3 cardiologists attending the meeting along with oncologists, nephrologists, neurologists, a Geneticist, reps from the major pharma companies and a few others thrown in for good measure. It should be an amazing meeting and I will report back on it once I get a chance.
Paula