AmyloidosisSupportNetwork.org is a dedicated patient-to-patient support community for families affected by Amyloidosis. Amyloidosis is a disease that occurs when amyloid proteins build up in your organs. Amyloid is an abnormal protein usually produced by cells in your bone marrow that can be deposited in any tissue or organ. Amyloidosis is rare, and the exact cause is often unknown. Treatments are available to help you manage your amyloidosis symptoms.

Share to us the treatments that had helped you resolve your symptoms.

General discussion about a wide range of topics related to Amyloidosis

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Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

Anyone whose life has been touched by a rare disease is welcome in a Ben’s Friends community. Most of our members are patients, but we have spouses and parents, besties and caregivers here as well.