If you need information, I recommend this wonderful group of sites for amyloidosis patients:
Amyloidosis Support Groups Inc. www.amyloidosissupport.org
Toll Free Hot/Help 866-■■■■■■■■
Our moderator ga_peach is very active with this group. They offer comprehensive and authoritative information on this condition.
I also recommend the amyloidosis foundation: http://www.amyloidosis.org/
Feel free to add other helpful resources that you have found.