What is Amyloidosis Support Network?
Amyloidosis Support Networkis a dedicated patient-to-patient support community for families affected by Amyloidosis . Amyloidosis Support Network is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Amyloidosis
Who can join Amyloidosis Support Network?
If your family has been affected by Amyloidosis, consider Amyloidosis Support Network your second home. Amyloidosis Support Network, as well as the rest of BensFriends.org’s patient communities, is free for members to join.
What is Amyloidosis?
Amyloidosis is a disease that occurs when amyloid proteins build up in your organs. Amyloid is an abnormal protein usually produced by cells in your bone marrow that can be deposited in any tissue or organ. Amyloidosis is rare, and the exact cause is often unknown. Treatments are available to help you manage your amyloidosis symptoms…
What is BensFriends.org?
In 2007, Ben Muñoz suffered a rare form of stroke caused by an AVM. He was unable to find the support he needed during the most difficult time, so he created an online support community AVMSurvivors.org to connect with others like him. AVMSurvivors.org led to the founding of BensFriends.org, driven to provide patient-to-patient support communities for people living with rare diseases.
BensFriends.org is a network of patient communities for people living with rare diseases. Launched in November 2007, BensFriends.org provides valuable patient support by creating and running compassionate, responsive communities. BensFriends.org maintains dozens of patient communities and has changed thousands of lives.