Rejoice and celebrate the season of Spring. Enjoy the colors and the beauty of nature. Reach out to your friends and loved ones and share the warmth, the colors and happiness of Spring. Greetings from Ben’s Friends!
Welcome New Members!
Thanks for signing! This site is built for the patient, spouses, parents, siblings and friends. Our goal is to connect you with others so you don't feel alone or don't want to overwhelm your family.
Help yourself. Explore our community, write about your experience, ask the community. Reach out to the community anytime you need support. Have fun! Again, our warmest welcome to you.
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IN THIS ISSUE
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Amyloidosis Support COMMUNITY HIGHLIGHTS
BEN'S FRIENDS HIGHLIGHTS OF THE MONTH
Kudos to Our Ben's Friends Facebook Team
Life With Crohn's is Coming Soon
Ben's Friends Joins the AVM TAAF Walk 2014
Amyloidosis Support COMMUNITY HIGHLIGHTS
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Featured Content: Newly released Amyloidosis Awareness Video
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Want to know more on Amyloidosis and how it works? Check out this very informative video shared by ga_peach on her discussion post!
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Featured Member: JMRoche618
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Just a recent member on the community, JMRoche618 continues to find ways to connect with others that can relate in his condition. He is working hard to make Amyloidosis more known to the public for he aims to encourage people to be aware of it. Perhaps you can show him how supportive this community is for people like him by dropping by his profile page and giving a quick hello!
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Picture of the Month
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Need some inspiration in your journey? Check out this photo mary shared for something to ponder on while your moving forwards in life.
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Community Stat:
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Number of Members as of May 1, 2014 : 124
BEN'S FRIENDS HIGHLIGHTS OF THE MONTH
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Kudos to Our Ben's Friends Facebook Team
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Have you seen our Facebook pages lately? Thanks to the FB team who have given our Facebook pages a new and improved look: Dancermom and Debra (AVM), Amanda (Addison's), Jane (PsA), Mandy (Chiari), Mads, Nel, and David (Erythromelalgia), and above all, our talented and dedicated Facebook Manager, Stephen Cox (PSC and Crohn's).
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Life With Crohn's is Coming Soon
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We are pleased to announce the launch of our Life With Crohn's community - a community dedicated to patients affected by Crohn's- a chronic condition that causes inflammation of the gastrointestinal tract. If you know someone who has Crohn’s Disease, please invite them to join our community and spread the word about Crohn’s.
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Ben's Friends Joins the AVM TAAF Walk 2014
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Ben's Friends Partners (Eric, Scott and Haley) along with several AVM Survivors members joined the 9th AVM-TAAF Walk2014 on May 4, 2014 in San Francisco. Over 500 participants gathered to raise awareness and funds to support TAAF's research, educational outreach, and programs. The Aneurysm and AVM Foundation (TAAF) is a 501c3 nonprofit dedicated to bettering the lives, support networks, and medical care of those affected by aneurysm and other vascular malformations of the brain.
