March 2012 Community Newsletter

Dear Friends and Family of AmyloidosisSupportNetwork,

February brought us great strides as our various communities of rare disease support groups gathered the largest number of new memberships of all time! The volume of blog posts, comments and discussions also increased. We at Ben’s Friends commend you all for your active support of our communities!

IN THIS ISSUE


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1. Welcome New Members

2. Featured Group: Musical Dedications

3. Interesting Video About Amyloidosis

4. Community Stats

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Welcome New Members

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As we ‘March’ on to the next month, we encourage everyone to do continue doing the same as we strive to level up by making stronger and more dynamic communities and, as a consequence, a stronger and more dynamic Ben’s Friends as well. How can you have a share in this?
1. Tell others about BensFriends.org– Spread the word around by telling everyone you know about Ben’s Friends – your family, your close friends, your doctors, even your Facebook friends! Mention us on your blog posts, on your e-mails, on your twits, updates, whatever it’s called on your social networks. Share our link, share the video posted on Youtube, like our pages.

2. Be involved.– Regularly read posts on your site; comment on them. Share your experiences to those who need support. Throw an inspiring line or two. That’s what these sites are about.

3. Be Interested. – Click on the other community links shown at the side of your home page and be inspired by similar stories of courage and determination the side. Share an article you found on interesting to your friends.
Again, we thank you and commend you for your participation in this. This may yet be the beginning of the biggest campaign to provide support to patients of rare diseases and their families!
We at Ben’s Friends will continue to be at your help.

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Featured Group: Musical Dedications

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John Denver once said, "Music does bring people together. It allows us to experience the same emotions. People everywhere are the same in heart and spirit. No matter what language we speak, what color we are, the form of our politics or the expression of our love and our faith, music proves: We are the same."

Can you dedicate one inspiring song to someone special with you today? Music indeed brings us closer to each other!

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Interesting Video About Amyloidosis

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Watch how a patient named Jennifer who has initially thought her symptoms are just normal, but has later found out it was Amyloidosis. JC Coyler shares in this video, "Amyloidosis-Mystery Diagnosis".

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Community Stats

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Total Unique Visitors to Site: 360
Peak Number of Members as of March 1, 2012 :163
New Members Joined Last February: 3

If you know someone who can benefit from Bensfriends, invite them to join our amazing community and tell them how our community had been your source of strength and great support!


Warmest Regards,

Your Community Moderators